Member Spotlight

 

 

 

 

 

The Epilepsy Foundation of Delaware (EFDE) is a private, non-profit service organization providing public education and supportive services to individuals and families affected by epilepsy/seizure disorders. As the local Epilepsy Foundation affiliate for over 50 years, the Epilepsy Foundation of Delaware is the only non-profit, 501(c)(3) charitable organization dedicated solely to serving people affected by epilepsy in Delaware. They are an independently incorporated affiliate of the Epilepsy Foundation of America.

The EFDE leads the fight to stop seizures, find a cure, and overcome the challenges created by epilepsy.

The EFDE team members include:  One full-time director, two part-time staff (development director and administrative assistant) and 2-3 part-time community educators.  All staff attend national and local trainings and conferences as part of their professional development.

With support from a volunteer Board of Directors and Professional Advisory Board, the EFDE staff work to ensure an improved quality of life for those who face the challenges presented by epilepsy or seizure disorders.  Members of their Professional Advisory Board include physicians (neurology and general) who provide medical expertise and guide programming.

The EFDE has two branches of service within the organization.  The first branch focuses on training of professionals such as law enforcement, faculty/teachers, early childhood educators, medical professionals and others.  The purpose of the training is to increase awareness of seizure disorders and to provide seizure recognition/management and first aid information.  They also provide educational conferences within the state.  The second branch includes direct service for individuals, of all ages across the lifespan, with seizure disorders and their families.  These services include resources, answering questions, information and referral, art therapy, the UPLIFT project and conducting support groups. Project UPLIFT is an internet and telephone program using cognitive behavioral therapy and mindfulness to treat depression in people with epilepsy. The Meet and Greet Support Groups are conducted in both Kent and New Castle Counties and are for all ages.  

EFDE partners with the following organizations to provide services:   The DE Department of Vocational Rehabilitation, Nemours/A.I. DuPont Hospital for Children, Christiana Care Health Services, Autism Delaware and local schools.

The EFDE provides transition services to youth through information, resources and referral to neurology.  They also work closely with the Christiana Care Health Services Transitional Care Team and Nemours Transition Coordinator.

The EFDE has materials in Spanish and can offer Spanish speaking services by connecting clients to someone who is bilingual (a bilingual Advisory Board member or a bilingual staff person in a partner organization).

The work of the EFDE is supported through private donations, a variety of grants including Grant-In-Aid from the State of Delaware, as well as special fundraising events.  Programs and services are provided free of charge to clients through funding.

The EFDE main office is located in Newport, Delaware in New Castle County.  However, they offer nationally recognized programs and services to residents in all 3 counties throughout Delaware. In addition, to the support groups provided both update and downstate, they have community educators providing services statewide and one based in Lewes.

The EFDE contact information is as follows:

Epilepsy Foundation of Delaware
240 N. James Street, Suite 104
Newport, DE 19804
Phone: (302) 999-9313
Fax: (302) 999-9763
Toll-free: (877) 369-2266
E-mail: efd@efde.org

Please note:  The Epilepsy annual conference is being held this year on November 18, 2017.  For more information, please click HERE.