Community Resources and Organizations

Family SHADE Membership Information

Membership is open to organizations and agencies serving families of children and youth with special health care needs that live in or receive services in Delaware and whose mission is consistent with the mission of Family SHADE. Membership is granted if an organization applies for membership and meets the criteria for membership.

Membership is open to family members and guardians of children with special healthcare needs or self-advocates that live in or receive services in Delaware and who are interested in advancing the purpose and goals of Family SHADE.

Membership is open to emerging adults with special healthcare needs that live in or receive services in Delaware and who are interested in advancing the purpose and goals of Family SHADE and who have reached an age where they can effectively and substantially contribute to the purpose and goals of Family SHADE.

For details about Voting and Collaborative Membership, please see Family SHADE’s Bylaws.

2020 Family SHADE membership survey – summary of results

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Family SHADE Member Organizations

• 321foundation  (Down syndrome advocacy, education and support)

A

• A Better Chance For Our Children  (adoption of children with special needs)
• Accessible Pharmacy – (comprehensive home delivery)
• A.I Dupont Transition Office – (pediatric and youth transitional services)
• All the Difference, Inc.  (evaluation, treatment, and research of sensory integration dysfunction)
• American Academy of Pediatrics (DE Chapter)  (professional association for pediatricians)
• Art Studio 410  (art classes for kids with special needs and their typical peers)
• AmeriHealth Caritas DE – (Delaware medicaid managed care provider)
• Art Therapy Express Program, Inc.  (art therapy for children and adults with special needs)
• Autism Delaware  (support and services for individuals with autism)

B

• BAYADA Pediatrics – (home health care)
• Behavioral Interventions, Inc. – (assessment & treatment for behavioral needs including Applied Behavior Analysis therapy)
• Best Buddies of DE – (one-to-one friendships, integrated employment and leadership development for people with intellectual and development disabilities)
• Birth to Three Early Intervention – (early intervention services)
• Blood Bank of Delmarva – (provides blood and blood products)
• Boardwalk Buddy Walk – (fun community event with a one mile walk to support individuals with Down syndrome)
• Brain Injury Association of Delaware – (support and education to traumatic brain injury survivors)
• Brandywine Valley Hemophilia Foundation – (services the hemophilia community by providing for special needs of patients and families)
• Bright Bloom Centers – (Formerly known as Brandywine Center for Autism) – (Applied Behavior Analysis therapy services)

C

• Central DE Speech Language Pathology – (assessment & treatment of communication & social skills)
• Champions for Children’s Mental Health – (support families with children who have behavioral and/or mental health challenges)
• Child, Inc. – (education and support for parents and caregivers to create safe and loving environments for kids)
• Children’s Choice – (social service agency providing specialized community-based services)

D

• Danio Diary – ( free resource that allows you to share information about your or a loved one’s healthcare securely and in real time, anywhere in the world)
• Delaware Asperger’s Support Group – (resources and supports for families)
• Delaware Bureau of Oral Health and Dental Services – (public health services to improve the oral health and well-being of all Delawareans)
• Delaware Early Childhood Center – (early childhood centers)
• Delaware Ecumenical Council on Children and Families – (faith-based health education & services)
• Delaware Family Voices – (help navigating healthcare services and insurance issues)
• Delaware Hands & Voices – (support to individuals who are deaf and hard-of-hearing)
• Delaware Hospice – (children’s programs with hospice/palliative care services)
• Delaware Sled Snipers  – (sled hockey team for youth with medical conditions)
• Delaware State PTA – (advocacy for DE children & resources for parents relating to public education)
• Division of Social Services – Community Partner Support Unit – (family assistance)
• Dover AFB Exceptional Family Member Program – (program for active duty service members who have family with special needs)
• Dover Behavioral Health – (offers comprehensive behavioral health treatment services to children, adolescents and adults)
• Down Syndrome Association of Delaware – (state-wide source for up-to-date information and education about Down syndrome)

E

• Easter Seals DE & MD Eastern Shore – (wide variety of services for individuals with special needs)
• Embrace – (offers respite care services to families that have children with disabilities)
• Epilepsy Foundation of Delaware – (Epilepsy programs, support and fundraising for a cure)
• Exceptional Care for Children – (skilled pediatric nursing facility)
• Expanding Options, Inc. (ExpO) – (for adults with disabilities, 18 and older, who have high-functioning skills, to expand their options for social engagement, employment and independent living)

F

• Fetal Alcohol Syndrome Disorder Task Force – (leadership for Fetal Alcohol Syndrome Disorder prevention and intervention)
• First State Educate – (education/advocacy group empowering families with information related to the education system in DE)
• Freedom Center for Independent Living – (resources and advocacy in support of independent living)
• Fusion Inclusion – (provide opportunities to participate in local races by providing access to adaptive running chairs)

G

• Governor’s Advisory Council for Exceptional Citizens – (leadership to improve the lives of exceptional citizens)
• Growing Bones Orthopaedic Institute – (subspecialty orthopaedic care to all children and individuals with chronic neurologic conditions)

H

• Hearing Loss Association of Delaware – (support for children and families of hearing loss)
• Howard T. Ennis School – (public school for children with significant disabilities)

I

• Icing Smiles – (provider of custom celebration cakes to critically ill kids and their siblings)
• Innovation Behavior Services, LLC – (offers Applied Behavioral Analysis therapy services to improve behavioral, social, and adaptive skill functioning)
• Interim HealthCare – (home health care)

J

• Jay’s House Inc. -(support and services for children with autism)
• JDRF – (Type 1 Diabetes support and fundraising for a cure)

K

• Kent-Sussex Industries, Inc. – (vocational rehabilitation)

L

• Learning Disabilities Association of Delaware (LDADE) – (provide support to people with learning disabilities, their parents, teachers and other professionals)
• LifeStance Health (formerly known as Mid-Atlantic Behavioral Health, LLC) – (behavioral health therapy and testing)

M

• Mary Campbell Center Children & Youth Program – (social and recreational programs)
• Maxim Healthcare Services – (home health care)
• Meadowood PTA – (Parent Teacher Association of Meadowood serving students ages 3-21 with disabilities)
• Merrill Lynch – Families of Children with Disabilities Program – (financial planning services)
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• Mosaic – (support for those with intellectual disabilities)
• Multiple Sclerosis Society, Greater DE Valley Chapter – (MS support and fundraising for a cure)
• The Music School of Delaware – (music therapy that provides individual and group programs designed for children and adults with a variety of special needs)

N

• The National Alliance on Mental Illness (NAMI) – Delaware – (mental health organization that provides public awareness, advocacy, support, education and housing for those affected by mental illness in Delaware)
• National Youth Leadership Network – (national voice for young leaders with disabilities)
• NC7, Inc. – (support for abused/neglected children)
• New Behavioral Network – (wide variety of services for kids with mental & behavioral health needs)
• New Castle County Government Community Resources Division – (provide diverse activities to meet the recreational, information, cultural and public service needs of the community)
• New Directions Early Head Start – (child care centers for kids with special needs & their typical peers)
• Nurses ‘n Kids – (child care centers for kids with acute and chronic medical needs)

O

• Office of Preparedness/Vulnerable Populations – DE Division of Public Health (assistance and resources for individuals with access and functional needs)

P

• Parent Information Center of Delaware – (help navigating the education system for kids with special needs)
• Parents as Teachers – (in home parent education services)
• Patient Sortal – (healthcare data management services)
• PAWS for People – (therapeutic pet visits)
• Pediatric Specialty Care – (in-patient care for kids with medically complex and technology dependent needs)
• Point of Hope, Inc. – (day programs for individuals with intellectual disabilities and other special needs)
• Practice Without Pressure, Inc. – (routine medical and personal care designed for people with special needs)
• Project Search – (transition)

R

• Rockford Center – (short-term in-patient psychiatric care)
• Ronald McDonald House of Delaware – (home away from home for families of a child receiving medical treatment)

S

• Skyzone – (trampoline park with sensory hours to provide a quieter, toned-down jumping experience for those with special needs)
• Styles by the Mile – (in-home hair styling)
• Sunny Days – (developmental intervention and therapy services)
• Sussex County Health Coalition – (collaborative effort to improve the health of children, youth and families in Sussex County)
• Swarthmore Financial Services – (special needs planning)

T

• Tender Hearts, Inc. – (supports medically fragile children)
• Theraplay Inc. – (pediatric therapy services)
• Tourette Syndrome Association of DE – (supports people living with Tourette Syndrome through education & public awareness)
• Transition, Education and Employment Model – (supported employment program for young adults)
• True Mobility – (accessible vehicles as well as lifts for vehicles and staircases)

U

• United Cerebral Palsy of Delaware – (programs and support for people with CP & other orthopedic disabilities)
• University of Delaware, Center for Disabilities Studies – (education, prevention, service, and research related to disabilities)

W

• We Teach Speech – (speech/language intervention services)
• We Stand 4 Something – (advocacy group working to enhance independence for people with disabilities)